Columnist Joe MacDonald reflects on moments of joy from one of his oldest son's first Christmases. It was a welcome respite from hemophilia.
The two-part Phase 1/2 trial — dubbed BeCoMe-9 (NCT06611436) — was designed to assess the safety and clinical activity of a ...
To protect her ankles from internal bleeding and pain, columnist G Shellye Horowitz opts for sensible shoes lined with custom ...
Columnist Alliah Czarielle explains how to best support someone with a chronic illness — and it's not what you might think.
Columnist Jennifer Lynne pens a wish list to Santa, full of her hopes and dreams for the future of those living with bleeding disorders.
Bone mineral density is decreased in 63.1% of people with hemophilia, according to a recent study from Germany.
Columnist Joe MacDonald's son may be living with a disability due to lingering complications of hemophilia, but it won't determine his path.
Amanda Wolgamott’s son, Hank, has hemophilia A, and they live in Texas. They share a story about the bloody scares that come with the territory of having a port. Amanda: So when he was about 9 or 10 ...
Amanda Wolgamott’s son, Hank, has hemophilia A, and they live in Texas. They describe a humorous misunderstanding at Hank’s school regarding alcohol wipes. Hank: Each year in our school district we do ...
Jared Formalejo, who has hemophilia B, and his wife, Alliah, live in the Philippines. They share their journey of love and navigating hemophilia and seizures together. Alliah: Jared had a seizure on ...